Protecting Caregiver Choice ● Upholding Family Care Rights ● Ensuring Quality Care for All
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Welcome to Indiana Families United for Care!
Welcome to Indiana Families United for Care!
OUR MISSION
Indiana Families United for Care aims to empower families with advocacy tools, champion sustainable Medicaid programs, and work to remove barriers so caregivers can provide necessary care without obstacles. We stand for ethical treatment, family care rights, and the protection of caregiver choices in Indiana.
Indiana Families United for Care is a powerful grassroots movement of families dedicated to securing the support our loved ones need, empowering family caregivers with essential advocacy tools, and driving impactful policy changes to improve the quality of life for individuals with disabilities in Indiana.
We collaborate with other organizations, government officials, and community groups to amplify the voice of family caregivers.
Our advocacy focuses on protecting caregiver choices and promoting policies that support and empower those who provide necessary care.
WAYS TO HELP
We NEED Your Help!
The challenges facing Indiana’s disability service system are complex, but meaningful progress is possible through thoughtful collaboration and informed advocacy. We are committed to advancing person-centered policies that strengthen supports for individuals with disabilities while ensuring long-term sustainability for the systems that serve them.
We urge you to stay engaged and be part of shaping solutions that improve outcomes across our state.
☑️ Stay Informed: Follow policy updates, waiver developments, and advocacy efforts impacting individuals with disabilities across Indiana.
☑️ Get Involved: Build relationships with your state representatives, share lived experience, and participate in the legislative process through public comments and direct outreach.
☑️ Sign-up: Join the ListServ to receive live updates and important action alerts!
H.B. 1689 BILL SIGNING
Indiana Families United for Care had the privilege of joining Governor Mike Braun, The Arc of Indiana, and numerous families on August 27 for the ceremonial signing of H.B. 1689. This significant legislation marks a vital advancement for medically complex families across Indiana.
Key highlights of H.B. 1689 include the following:
- Establishing a clear definition for “extraordinary care.”
- Requiring the FSSA to report to the DDRS Advisory Council on plans for supporting individuals with extraordinary care needs.
- Mandating annual reports on the usage of Medicaid HCBS waivers to provide families and advocates with essential insights for improvement.
- Expanding the statewide ombudsman program to include Health & Wellness and Traumatic Brain Injury waivers.
- Initiating a study on the potential development of a Complex Care Assistant program in Indiana.
We extend our heartfelt gratitude to Rep. Ed Clere, the bill’s author, and Sen. Gregory Goode, the Senate sponsor, for their leadership, along with other supportive legislators. Special thanks to Kim Dodson, CEO of The Arc of Indiana, for her unwavering commitment, and to Lindsay Haake, our PR specialist, for effectively amplifying families’ voices throughout this journey.
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