Protecting Caregiver Choice ● Upholding Family Care Rights ● Ensuring Quality Care for All
Welcome to Indiana Families United for Care!
We are a grassroots movement of families who are dedicated to securing the support our loved ones need and advocating for those who provide that care. Our mission is to empower family caregivers with essential advocacy tools and drive impactful policy changes that will improve the quality of life for individuals with disabilities in Indiana.
Our Fight for Families: Addressing Critical Issues
Over the past year, Family and Social Services Administration (FSSA) policies have created devastating challenges for families caring for individuals with profound disabilities. These individuals depend on caregivers for every aspect of their daily lives, from eating and mobility to personal hygiene. Despite meeting the criteria for medically necessary services, families have faced countless barriers that make accessing care nearly impossible.
Some of the most urgent challenges we face include:
Restrictions on who is allowed to provide necessary disability services, limiting options for families and creating gaps in care for individuals with profound needs.
Bureaucratic barriers that complicate the process of accessing essential services, like caregiving and medical equipment.
Denials and shifting responsibilities between programs that leave families scrambling to find care and supports that should be readily available.
Cost-cutting policies that threaten to erode vital caregiving services and put families under unnecessary financial and emotional strain.
Unrealistic scheduling requirements that fail to understand the unpredictable nature of caregiving for individuals with profound needs.
Families are feeling abandoned, and the system meant to protect them is doing the opposite. The time for change is now.
Our Advocacy: United for Change
We are a coalition of eight volunteer mothers of medically complex children and one dedicated professional working pro bono for the cause. Together, we tirelessly work to amplify the voices of family caregivers, ensuring that policymakers understand the urgent needs of these families.
Our advocacy focuses on:
Protecting caregiver choices and ensuring policies support family caregivers.
Collaborating with government officials and other organizations to bring attention to the issues facing families.
Driving policy changes that recognize the extraordinary sacrifices made by caregivers and improve access to essential services.
Why We Need Your Help
The challenges are immense, but together we can make a difference. Policymakers must act to stabilize the system and ensure family-centered policies that prioritize the well-being of Indiana’s most vulnerable citizens.
Join us in this critical fight. Together, we can create a system that honors the sacrifices of family caregivers and ensures the support needed for individuals with disabilities.
Stay Informed: Read the latest news, updates, and resources related to our advocacy efforts.
Get Involved: Find out how you can support the cause and make your voice heard.
Help us Protect Indiana's Most Vulnerable Families